‘Cam,’ a local six-year-old boy is the inspiration for this event and organization. Cam was diagnosed with Langerhans Cell Histiocytosis (LCH) when he was ten-months-old. LCH is a disease that attacks all the symptoms of the body in the same manner as cancer. It is very complex and can cause additional disease to manifest such as DI, which Cam also has. This means that Cam’s pituitary gland no longer functions, causing extreme thirst and frequent urination. LCH can also cause Central Nervous System disease. In the world, there are only 1,200,000 people diagnosed with LCH and doctors still do not have all the answers to this disease.
After white masses on Cam’s gums appeared, several rashes on his body and trouble breathing, Cam’s parents took him to the doctor several times. Upon no answers, Cam’s problems were being treated individually until his parents were told he needed a biopsy, and fast. A few days later the doctor called and explained to his parents that their son was seriously sick with LCH. Devastated and scared, it was time to get the ball rolling!Continue Reading No Comments